Did you know that it is a bit of a steep learning curve when it comes to suddenly living with someone with a chronic illness who has also been identified as a mystic; all while being under mostly forced quarantine because of a global pandemic? (That’s a very long and probably run on sentence. Whatever, it’s 2020. Everything is taking too long and is way too messy)
Well, I cannot attest to whether or not it’s actually a steep learning curve for that previous question or not. I assume it’s not the easiest. One, more than likely, would need to have the patience of a saint, the ability to grant grace freely and without reserve, have deep compassion, and a willingness to enjoy the absurdities of life.
What I can give personal experience on is that it’s been a very weird learning curve for me to live with a partner who actually wants to be my partner fully and is invested in who we are together. I’m just not used to someone sharing in some of my most intimate and sacred moments.
When the pandemic started to take off and my friends within my autoimmune community started getting sick and then rapidly dying, I had this visceral ache that I couldn’t describe appropriately. It was more than grief. Although, between my friends and my Beloved’s uncle we lost 19 loved ones. Grief is bound to feel like more than grief when multiplied so many times over.
At the time, I kept writing in my prayers and my journal that I felt like I needed to flay my chest open and somehow envelop all of these vulnerable loved ones inside of me. To open my chest as wide as possible and then sew myself back up.
I’d keep them safe. I’d go through the trials while they rested in the closest place I knew they could interact with the Holy. The place where I meet the Holy. Internally, prayerfully, and expectantly.
But of course, that’s not possible. And on a practical level sounds disgusting. How big would I have to be to put 19 people inside my body without going all Hannibal Lecter, or Donner Party on them? Real world applications is not that helpful here.
I pushed that feeling aside even as I kept acknowledging that I felt it. It’s my grief talking, I’m too weary and worn. Let it be.
Then, as a nation we watched three horrible injustices happen to our BIPOC brothers and sisters. We watched George Floyd be murdered right in front of everyone by those who are supposed to protect and de-escalate. We saw Ahmaud Arbery literally run down and killed. And we heard the story of Breonna Taylor, when the police came in the middle of the night, frightening her and her boyfriend, her boyfriend did what many legal gun owners would do. And when he did shoot, police blanketed the apartment and others in gunfire killing Breonna.
As the nation and world started banding together recognizing that racism in America is still poisoning our country, there was a lot to grapple with. I remember praying, thinking, and writing about my need to make more room in my heart.
Not more room for the clearly oppressed. More room for myself so that I could confront my own internalized racism without getting defensive. I also needed more room in my heart for those I did not want to love. For those who had no right for my love. For the oppressors, the leaders of hate, the champions of division. I struggled with it. I still do.
Among all this, my body decided it was about time to remind me of the lessons it had already taught me. Those lessons of empathy, compassion, and newness within chaos. That sometimes it’s the brokenness that’s points to the wholeness of the Divine.
In laymen’s terms. I got sick. We realized that I was having fluid once again starting to accumulate around both of my lungs. A host of other health complications started occurring much like dominoes tipping.
I would love to say that I’m just the most incredible, chipper, sunshiny chronically ill person all the time. But…I am a horrific liar. I’m a whiner. I dislike being sick a great deal. What’s harder though is doing all this during a pandemic. I can’t get certain treatments because of the risk of coming into contact with Covid is too high.
So, we are doing all of this at home and my chest is one of the major areas of frustration. My ribs are fragile. The break fairly easily. Some like to pop a little out of place. I continue to have that fluid. I have to be consistently aware that I might have a lung collapse, again. But it’s been years since the last one. However, the pain and discomfort is more than I would wish on most people. I also have a tendency to shy away from asking for help or even realizing I need help. This can sometimes make life more difficult than need be. It has been hard for me to learn what I am not sharing by accident as well as what is worthy of asking for help. My current condition brings a level of exhaustion I wasn’t expecting. So in reality, pretty much everything is worthy of asking for help, and yet I still forget to ask. I’m sure it’s frustrating for the one I’m supposed to be asking for help from. However, between the exhaustion, pain, and my own accidental complications because I forgot to ask for help my normal “it is what it is” attitude has slipped some.
Last week I was having a bit of a whining session and I told my Beloved that I just felt claustrophobic from the pain. I felt every part of my body all of the time. I felt caged in, too many boundaries, and no way to even see the illusion of freedom. Even internally it felt tight and pressured. My chest felt like the first and most egregious offender.
I’ve been banging on the walls, gasping for air, screaming for someone, anyone. Please let me out, if only for an hour. Please. I need sanctuary.
Last week I started praying a prayer by Mirabai Starr and using it as a meditative passage during my contemplative practice.
“Let me swallow the Sacred and burn with the Presence, Illuminating a way home to the Truth. Lit from within, let my blazing heart become a sanctuary.”
It’s a beautiful prayer. Today, as I prayed it and I stayed on that final line, “my blazing heart become a sanctuary” something cracked deep inside of me.
I am sitting at the feet of the Divine. I feel or hear, as much as one can explain, the Divine ask me a question. “Do you want your heart to become a sanctuary or not?”
Already still, my breath catches. I turn my face upwards. “Please, today is a day I’m ready to hear from Sophia.”
And as I sit I feel my soul crack open through my sternum and hold my chest open wide. I’m flayed out, spirit, soul, heart, and mind while Holy Wisdom holds the doors of my being wide open.
Here I sense my friend rushing towards me. Chandra lost so early in this pandemic. She stops. I feel her smile and I know a piece of me is a sanctuary for a piece of her. One by one, friend after friend. I cannot contain my tears.
Silently I cannot thank the Holy for this gift enough until my dear friend Lydia comes and I can almost feel her kiss on my cheek and hear the words she says. “A keeper of stories is a keeper of souls for those who are left behind.” A gift for the son she never got to hold.
I cannot be silent. “This is not wisdom this is sorrow mixed with thanksgiving and responsibility.”
“What else is wisdom? Where does it grow from? A life of ease?”
I am silent again. I am still flayed open. Held onto by the Holy. “Make me a sanctuary.”
Eyes closed, images flooding in. My Beloved standing over me gently waking me up after a fall. Tender eyes and patient heart. “Come on, let’s get you to bed. I know it hurts.”
My Beloved opening up a package and tossing it my way. It’s a headache wrap. “If it works well and stays cold long enough we should get multiples so you don’t have to wait when your in pain.”
My Beloved bringing to me freshly made dinner straight to my bed. Always delicious and always kind. Many nights end with homemade pies because that’s one way he shows his love for me. (He knows me too well)
Me existing, trying to adapt, and apologizing for the process of it all. My Beloved’s constant refrain. “No apologies.”
I hear you. It’s full disclosure no matter if I think it sounds too whiny. I’m not on my own nor am I someone else’s responsibility. We are partners.
“Make me a sanctuary.”
“This is going to hurt.”
“I already hurt. Make me a sanctuary”
“All those people, those who abuse you, abuse your Beloved, abuse the vulnerable, abuse the oppressed. You need to make room. There will be some who will see the Truth. Do not turn them away.”
“And the ones who refuse the Truth, the ones that continue the abuse? Who am I called to be then?”
“Who everyone is. Truth teller, grace giver, mercy lover, a compass to point toward the Holy, and none of that ever excludes justice. But you can only succeed if you do it all through the lens of Divine love.”
I am flayed open. I am being stitched back together from my time today. That ache I feel, it is deep. It is heavy. It is one that cannot just be pushed aside.
I asked for sanctuary. I asked to become a sanctuary and that was a deep ask. It broke me wide open, shook me up, and made me encounter truths I already knew but were too intimate for me to hear.
So as I sat there sobbing face turned upwards, I suppose it’s no surprise that my Beloved heard and rushed in to make sure I was ok. And as he laid a hand on my shoulder and asked if I was ok. I rubbed my chest and said “I’m ok. Welcome to living with a mystic. Hard good word today. I’ll explain later, if I can.”
And as he walked out of the room looking slightly bewildered I thought, “You know, someone might want to set up a support group for partners of people like me. I bet that learning curve is pretty dang steep.”